Introduction
Who I am
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Nice to meet you!
I live in Korea and 19 years old. And also I am a 2nd grade student in Soonchunhyang premedical school in Korea. I hope everyone who visit my website could get knowledge about Gaucher's disease and have a nice day! |
Why this page is created
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This website is created to meet a course requirement making a weebly website about one disease in the class of Prof.armstrong.
The reason why I chose Gaucher's disease is that many people in Korea barely know about Gaucher's disease. It is true that Gauchere's disease is very rare genetic disorder. But It is also true that some patients are still fighting out this disease and they need our attention and better treatments. So the actions starting from this little efforts like having a presentation about Gaucher's disease and making a website would be hope and help for the patients of Gaucher's disease. And It is why understanding this disease is important. |
Campaign : International Gaucher Day on October 1st
There already is a campaign to raise social attention for Gaucher disease. On Gaucher day, people gather and have peaceful demonstrations and patient and family get - together. But I think this event need to attract more attnention globally and be systematic.
So I suggest , posting an article and videos including patients' lives with Gaucher disease and Gaucher day on Gaucher day and give prizes like points in certain popular apps to those who share the videos to their friends on facebook.